PCOS still difficult for doctors to diagnose and treat. Here's why

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NBC News contributor Caroline Hopkins is a health and science journalist who covers cancer treatment for Precision Oncology News. She is a graduate of the Columbia University Graduate School of Journalism.

Every morning, Jeni Gutke swallows 12 pills. In the evening, she takes 15 more, then another before bed. She also takes an injectable medication once weekly, and two other medications as needed. Gutke, of Joliet, Illinois, has polycystic ovary syndrome, or

deal with it. “It’s such a vast syndrome that affects everything from your head to your toes,” she said. She was diagnosed with endometrial cancer — another risk linked to and the doctors who care for them say they want better options — treatments for the condition’s root causes rather than bandages for individual symptoms. Even as calls for better treatments grow, the lack of investment in

. Although research is murky when it comes to the best diet for women with mentioned in President Joe Biden’s recent executive order to advance women’s health, which includes $200 million for NIH research grants, or the White House’s calls for Congress to allocate $12 billion to fund women’s health research. A spokesperson at the NIH said that it’s too early to know which women’s health conditions will receive funding under the new initiative. “Given how common

treatments. A Menlo Park, California-based company called May Health, for instance, is developing a one-time surgical procedure it thinks could help with drug trials were announced after the meeting, but the FDA’s interest shows a growing push for improved treatment, said William Patterson, a spokesperson for

is unfortunately not curable, so treatment is about managing its symptoms,” said Dr. Jessica Chan, a reproductive endocrinologist at Cedars-Sinai. Chan said birth control can be a good option for some, but not all, of her , although studies have been small and early -stage. Novo Nordisk, the company that makes Ozempic and Wegovy, said it has no plans as of now to seek FDA approval for

or where it arises from,” Chan said. into two different diagnoses: one having more to do with the reproductive cycle and fertility issues and another having more to do with metabolism, high body weight, and diabetes. “ ” at all, because it has more to do with excess hormones than it does with actual cysts on the ovaries.

. The result? A missed diagnosis. This was initially the case for Candice Bolden, 35, who started noticing acne and excess facial and body hair several years before she was diagnosed with

 

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