PARIS, April 10 — Patrice Abela first knew something was wrong when his eldest daughter was learning to walk and her feet left trails of blood behind her, yet she showed no sign of distress.
“Due to repeated infections, my eldest daughter lost the first joint of each of her fingers. She also had to have a toe amputated.”Abela said they may not feel physical pain but lamented their intense “psychological pain”. “Pain plays a major physiological role in protecting us from the dangers of our environment,” said Didier Bouhassira, a doctor at the centre for pain evaluation and treatment at Ambroise-Pare hospital in Paris.
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