'She doesn't feel like my mum anymore': Learning how to communicate after a dementia diagnosis

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Recent films have depicted the distress and frustration of children caring for parents with dementia but may leave viewers grappling with a crucial question: How should you speak to someone with dementia?

Putting back those six redundant cups, though, became problematic and there were signs Helen felt patronised.

His mum has also started to call him her nephew, which he's found particularly hard. "There's a lot of grief," Nick says. "The person you knew isn't around anymore."Nick soon realised he needed support. He got in touch with Dementia Australia, which provided a training course to help him better communicate with his mum.

As frustrating as it can be, she adds, prompting is a redundant exercise. "No matter how much you prompt, that won't help them remember if they can't recall information. The memory just doesn't exist in that person's brain anymore." One of the most confusing things for caregivers can be the ever-changing nature of the condition, Williams says: "Certain strategies may work for a week or two then you may have to change your approach to that person again."After just one session, the Dementia Australia education program was transformational for Nick because it helped clarify misconceptions. "You don't appreciate how much you're doing the wrong thing 'til you're shown it," he says.

 

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